Biobanks are pivotal infrastructures to drive the concept of precision medicine research forward. Biobank Norway aims to foster and support collaboration between Norwegian biobanks and the life-science industry. Such collaboration is important to create additional value for public biobanks, improve R&D productivity, and advance health care. This session will explore public-private partnerships (PPPs) collaboration models, introduce cutting-edge resources in Finland and the UK, and discuss the views and perspectives of the industry and Norwegian biobanks on PPPs.
Biobanks play an important role in modern societies by contributing to knowledge generation. It becomes increasingly important for biobanks to engage with their stakeholders including biobank participants, research groups, regulatory bodies, and funders. This session will discuss strategies for stakeholder engagement, and provide insight into recent tools and initiatives that promote interface and exchange between biobanks and their participants.
Open data sharing models increasingly challenge the old paradigm – data collected and used only at a single institution. Who owns the data we collect? What are the regulatory barriers to data sharing? How to secure data privacy and participants’ rights while simultaneously enabling data sharing? This session will provide insight into the work conducted by the Norwegian Health Data Programme, discuss the implications of the upcoming EU General Data Protection regulation and the BBRMI-ERIC code of conduct of data sharing, and explore the UK biobank data sharing model.
Work stream 1: Biobank for innovation and industry research collaborations
Work stream 2: Biobank sample quality and integrity (in Norwegian)
Work stream 3: Preparing your biobank for the GDPR (EUs forordning for personvern) (in Norwegian)